Wehaveavoice

Spotlight on Huntington's Disease Awareness month initiatives for the month of May

WeHaveAVoice Radio Show Updates

WeHaveaFace news and updates concerning fundraising events from around the world as well as TEVA Pharmaceutical grant updates.

Leanne Delong interviews Kevin Jess in regards to his son being tested for HD

James Valvano speaks candidly with Kevin about his journey to climb mountains for Huntington's Disease

Kevin and Leanne talk with Dr. Bonnie Hennig-Trestman, Leaha Mattinson and Dr. Herwig Lange about the importance of knowing when and how to talk to your children about Huntington’s Disease offering important strategies for best outcomes.

Founder of WeHaveAFace.org, James Valvano Addresses HD/JHD Community about 2019.

A couple of announcements to our community.

Leaha Mattinson is a change management specialist, life coach, speaker, and author who “walks her talk” in a truly extraordinary way. In 2008 she learned she would someday inherit Huntington’s disease, a genetic, neurological, terminal illness that affects the brain and progressively shuts down the mind and body. It was a devastating diagnosis—yet Leaha realized that to be true to the message she shares with clients, she must live her life consciously with enthusiasm, grace, and gratitude. She developed her own wellness protocol to halt the onset of the disease by focusing on nutrition, exercise, restorative sleep, mindfulness, and a pervasive sense of reverence for life. But the most crucial attribute of Leaha’s success is her mindset: She embraces passion, happiness, and possibility, and turns all negativity into positive life experiences. She attributes her work ethic and values to the example set by her beloved parents and a childhood growing up on a farm where she was immersed in the rhythms of natu

Listen to #HuntingtonsDisease patient, John Howard as he reads his poetry. @iHeartRadio @Spreaker

Let your voice and poem be heard!

Cindy Moore and Kevin Jess

#HuntingtonsDisease @iHeartRadio @Spreaker

Brenda Vega and Daniel Medina join me to discuss #WeHaveAFace #Mexico