Wehaveavoice

  • Author: Vários
  • Narrator: Vários
  • Publisher: Podcast
  • Duration: 62:55:43
  • More information

Informações:

Synopsis

WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.

Episodes

  • Home Healthcare / Nursing Homes, Sexuality and Huntington's Disease

    29/03/2016 Duration: 04min

    LIVE this Thursday night at 7PM (EST) with special guests - Mary Etta Robertson, Sarah Parker Foster, and Marie Salvaggio Clay! Topics: Home Healthcare / Nursing Care, and Sexuality and Huntington's disease! As will all of our shows, WeHaveAVoice remains focused on Huntington's disease patients, patient advocates, and caregivers. It is imperative that we give a "voice" to necessary topics that we experience each day in the international Huntington's community. Stay tuned!

  • No Time To Spare! 1st Community Bowling Tournament for Huntington's and Juvenile Huntington's disease!

    12/03/2016 Duration: 02min

    LIVE from: "No Time To Spare!" WeHaveAVoice - 1st Community Bowling Tournament for Huntington's and Juvenile Huntington's Disease! Orange Bowl Lanes in Kissimmee, Florida! Engaging the Huntington's disease community is part of our mission!

  • Mary Robertson speaks from the heart. Caring for her husband Paul who had Huntington's disease.

    11/03/2016 Duration: 01h07min

    March 10, 2016 7PM (EST): Special guest Mary Etta Robertson from North Carolina! Mary has been a loving wife and caregiver of her husband Paul Robertson for over fifteen years. Paul gained his Huntington's wings recently, and we will hear Mary's story of strength, love, and hope. The international Huntington's community has followed Mary and Paul on Facebook for quite some time. It is now time for Mary to tell their love-story, and provide hope for the community.

  • Special Show with Mary Etta Robertson - Love and Care for Huntington's Disease

    05/03/2016 Duration: 02min

    On March 10th at 7PM (EST), we will air our first LIVE show. The incredible Mary Etta Robertson (from North Carolina) will be our first guest of the year. Mary will share her inspirational story of love...strength...and hope with our Huntington's disease community. Mary has been a loving wife and caregiver of her husband Paul Robertson for over fifteen years. Paul gained his Huntington's wings just recently. The international Huntington's community has followed Mary and Paul on Facebook for quite some time. It is now time for Mary to tell their love-story, and provide hope for the community.

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