Wehaveavoice

A short monologue about how Huntington's disease is being ignored.

The modern phenomena of Doomscrolling and its affect on Huntington's Disease. A short monologue.

A short monologue concerning the possible use of nicotine patches for Huntington's Disease.

A short monologue about caregiver burnout.

Child caregivers are no longer uncommon and the numbers are rising.

44% of men die prematurely in Canada. Most likely higher in the US. But what about men with Huntington's Disease?

Kevin uses AI to analyze all information to get a picture of what may happen in regards to HD research in light of possible policy changes due to a new U.S. administration. This is not a political post.

Host, Kevin Jess, talks about Rare Disease Day which is just around the corner

Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD

Bunny Clark talks about The Walk for Huntington's Disease May 28th

Kevin Jess announces charity closings and discusses what's next for WeHaveAFace.

Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.

Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community

Jen and Kevin talk about hope, testing and other topics

Kevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 25

Kevin talks about memories of his wife Sheila and how it's important to nurture friendships

Jen gets an unexpected call and discussion ensues.

Jen and Kevin chat about disappointments over the years in the Huntington's Disease community

Jen and Kevin chat about the death of a loved one and strategies leading up to and after death.