Wehaveavoice

A short LIVE update: WeHaveAFace.org Canada, "Blue and Purple" - Poetry Project, and the "WeHaveAFace" Magazine!

Tonight Dr. Samuel Frank of the Huntington Study Group (HSG) discusses TEVA's new drug - AUSTEDO for the treatment of chorea in Huntington's disease. There will be questions from the community! #YouAreLoved

#WeHaveAVoice LIVE Updated! LIVE UPDATE! TEVA Pharmaceuticals released HD Drug! Poetry Project - Volume 2! 2nd Annual WeHaveAFace Convention!

Stay tuned for the Genefo HD Webinar which will take place on April 6, 2017 with our very own Dr. Herwig Lange of the George Huntington Institute!

#WeHaveAFace travels to California - editing "The Warriors" the Juvenile Huntington's Disease documentary.

Today Dr. Herwig Lange of the George Huntington Institute will be answering questions about dental care and HD/JHD. We thank Dr. Lange for his ongoing support!

#WeHaveAVoice LIVE Radio! Tonight: Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt discuss their children's experiences using cannabis oils for Juvenile Huntington's Disease.

WeHaveAVoice - Thursday, February 9, 2017!Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt!We will hear from these amazing JHD Mothers and the miracle of Cannabis Oils which have helped their children! Stay tuned and join the conversation! #YouAreLoved

WeHaveAVoice Radio with Dr. Herwig Lange from the George Huntington Institute in Germany! Dr. Lange has agreed to join us to discuss the topic of CAG.

#WeHaveAFVoice - Tonight's LIVE show will discuss "Behavior with Huntington's and Juvenile Huntington's Disease" with our great panel of guests! Tonight's topics: Aggression, Anxiety, and Altered Sexuality with HD and JHD!

Tonight Cindy Moore joins us from Brockville, Ontario Canada to give us an update on the upcoming JHD Bowling Tournament on November 11, 2016. We look forward to another amazing event with our friends in Canada! Stay Tuned!

Hurricane Matthew is slowly making its way up the coast! We are coming to you LIVE from Saint Cloud, Florida! James Valvano and Mary Etta Robertson.

On Thursday, October 6th, we will have another LIVE Broadcast regarding HD/JHD events within the community! Stay tuned...we will be discussing events here in the USA, and in England! #YouAreLoved

#WeHaveAVoice" Radio: Families torn apart by HD/JHD" - Joining us for this LIVE show will be: Kevin Jess, June Brown, Sarah Parker Foster, Clarice Miller Deshalamar. #YouAreLoved

"All About CAG" - LIVE with Dr. Herwig Lange from The George Huntington Institute of Germany! This is a much needed conversation regarding a true negative and a positive test result for Huntington's and Juvenile Huntington's disease. The discussion will include questions from the international community and answered by Dr. Herwig Lange.

LIVE from Brockville, Ontario Canada!Tonight we celebrate the 1st Canadian walk for Juvenile Huntington's Disease! We are LIVE with Cindy Moore, Erin Moore, Dr. Kyle Fink, and Dr. Jan Nolta! Fundraiser Show! #YouAreLoved

WeHaveAFace.org Global HUBS - Awareness events for Huntingotn's and Juvenile Huntington's disease! Today we are updating the community regarding some wonderful events we have scheduled for August and October 2016! For additional information: www.WeHaveAFace.org/Events

Our brother John gained his Huntington’s wings on July 17, 2016 and became an HD Angel. On behalf of my entire family, we thank you from the bottom of our hearts for your love, support, and strength during this time. It is impossible to reply to all of your wonderful and comforting comments, but we know they are there…we know that we have your love and support. We will continue the mission to broaden awareness of Huntington's and Juvenile Huntington's disease. #YouAreloved

Tonight's show we will discuss home healthcare, nursing home care, and sexuality in Huntington's disease. Our guests: Mary Etta Robertson, Sarah Parker Foster, and Marie Clay. Sensitive subject matter is important to discuss to further educate our international Huntington's peers and caregivers. It is also necessary to remove stigmas regarding what we experience in our community. We thank you for listening!