Synopsis
WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.
Episodes
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WeHaveAVoice: Discussing the Coronavirus (COVID-19)
20/03/2020 Duration: 55min#WeHaveAFace #WeHaveAVoice: Discussing the Coronavirus (COVID-19) - #Coronavirus #COVID19 #CDC #HuntingtonsDisease
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Cherry Chism: When you leave the Roche clinical trial
19/03/2020 Duration: 44minCherry Chism talks about her husband leaving the Roche Trial
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Louise Vetter, President and CEO of HDSA: HD Trial Finder
16/03/2020 Duration: 40minLouise Vetter, President, and CEO of the Huntington's Disease Society of America (HDSA) speaks with James Valvano about the HD Trial Finder. We must broaden awareness of studies and trials for our Huntington's disease population.
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Dr. Peg Nopoulos: KidsHD/ChANGE-HD
12/03/2020 Duration: 35minDr. Peg talks about the ChAND-HD trial.
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Jonathan Monkemeyer Rare Disease Day
12/03/2020 Duration: 53minJonathan speaks to us about Rare Disease Day event as well as reusing existing drugs to treat or cure HD/JHD
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James Valvano: New Horizons After 2020
08/03/2020 Duration: 01h08minWeHaveAFace founder, James Valvano talks about his upcoming retirement and the future of WeHaveAFace.
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Jimmy Pollard of CHDI: HD Education on a Global Scale
07/03/2020 Duration: 58minJimmy Pollard talks about his experiences and imparts lessons to apply to HD caregiving.
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Gene Veritas: CHDI Therapeutics Conference
05/03/2020 Duration: 53minGene Veritas talks about his recent attendance at the CHDI Therapeutics Conference.
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Karen Marais: HD in South Africa
03/03/2020 Duration: 58minKaren Marais talks about her relationship with her partner Chris who has Huntington's Disease
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Advocating in suicide prevention and other topics with Sarah Warehime and Dr. Herwig Lange
11/01/2020 Duration: 57minLeanne and Kevin speak with Sarah Warehime, a beginner as a suicide prevention advocate and Dr. Herwig Lange. We talk about a range of topics including suicide prevention and how to get involved.
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A caregivers experience with behaviorial issues with Huntington's Disease
29/12/2019 Duration: 57min"Kay" talks about her relationship with her best friend who has Huntington's Disease and how her mood swings are affecting important decisions she has to make.
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Diamonds on the Water
14/11/2019 Duration: 09minKevin Jess reads an excerpt from his novel that is still in progress.
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One woman's experience with testing for Huntington's Disease
13/10/2019 Duration: 01h10minKevin Jess talks with his daughter about her recent experience with testing for Huntington's Disease
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2019 Convention and Event update
27/09/2019 Duration: 03minOur panel of speakers for our Convention in November, 2019
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James Valvano talks with Kevin about his climb in Scotland
28/08/2019 Duration: 01h10minJames Valvano speaks with Kevin about his mountain climb at Ben Nevis, Scotland and a talk about future shows.
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Juvenile Huntington's Disease: A Story of Friendship
08/08/2019 Duration: 47minKevin speaks with Rebecca Bratt, Erin Wade's best friend
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Walk for a Cure
02/08/2019 Duration: 35minKevin and Leanne speak with Cindy Moore, President of WeHaveAFace Canada
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WeHaveAFace with special guest James Valvano
29/04/2019 Duration: 48minKevin and James talk about events and issues of the day relating to HD advocacy and upcoming events
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The case for repurposing existing drugs for the fight against Huntington's Disease
26/04/2019 Duration: 01h05minJonathan Monkemeyer talks with Kevin Jess and Leanne Delong