Dementia Researcher

Impact of Patient and Public Involvement in Research

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Synopsis

In this latest podcast we hear from a volunteer, researcher and charity working closely together to ensure that people affected by dementia are involved in every stage of research to maximise impact. We discuss the challenges of PPI and provide some practical advice to support you to work with volunteers in a mutually beneficial way. Patient and public involvement (PPI) in research is a philosophy whereby research is carried out ‘with’ or ‘by’ people affected by the condition rather than ‘about’, ‘for’ or ‘to’ people. Over the past twenty years an increasing value has been placed on including the lived experience of patients and the public in research covering the full spectrum of basic science through to health services. Our panellists today all work for or are funded by Alzheimer’s Society - Anna-Louise Smith, Research Engagement Manager, Dr Kirsten Moore, UCL Senior Research Fellow and Jane Ward, Research Network Local Area Coordinator. Alzheimer’s Society has pioneered the active involvement of people