Your Mark On The World
#346: Big Job for 1 Man: Save 200M Children from 7k Rare Diseases
- Author: Vários
- Narrator: Vários
- Publisher: Podcast
- Duration: 0:16:13
- More information
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Synopsis
Read the full GoodCrowdinfo article and watch the interview here: http://bit.ly/1TFaY8k. Subscribe to this podcast on iTunes by clicking here: http://bit.ly/ymotwitunes or on Stitcher by clicking here: http://bit.ly/ymotwstitcher. The always cheerful Dr. Robert Selliah, founder of American MedChem, is deadly serious about finding cures that could save up to 200 million children around the world. He explains, “About 7,000 rare diseases are known and nearly 20 million children in the US and 200 million children worldwide have some form of rare disease. But for 95 percent of these rare diseases there are no effective targeted medicines. 30 percent children with rare diseases will not live to see their 5th birthday. Lack of medicines is primarily because it is not profitable for pharmaceutical companies to create medicines for these children – no market-based drivers.” Robert explains how far reaching the problem is. “In the same way, lack of profitability for pharmaceutical companies is the reason for the la