Help & Hope

See Me, Not My Disability - A Conversation with Tim Merkel

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Synopsis

How do you pursue your dreams when congenital muscular dystrophy threatens your independence? When you are born with muscular dystrophy, you face a life of muscles breaking down, and therefore being unable to keep up with growth spurts. During a normal growth spurt, Tim’s spine curved so rapidly, that without a full spinal fusion, he would die. At fourteen years of age, Tim had a fourteen-hour surgery to straighten his spine. Tim describes how the excruciating post-surgical pain led him to question God’s wisdom and love. He had to relearn to walk, and cannot walk without assistance to this day. But instead of turning into a bitter young man inwardly, Tim persevered through a year of pain and eventually, rehabilitation that helped him learn to walk with assistance. The recovery period gave him time to think through his goals of pursuing a life of purpose. His dream to attend a university away from home seemed impossible, but Tim persevered and successfully learned how to navigate the streets of Philadelphia, P